Are you still with me?
We received lots of well meaning DVD’s about how to care for the stoma. There were You Tube videos offering advice. They were interesting in general principles but our problem was that everyone in the DVD’s and on the internet had a trim body and a normal stoma. Think about it. If you had rolls of fat on your stomach you would not want to make a video to show the world. In our case we have layers of fat that denied us a firm foundation for attachment. We had a stoma that had a mind of its own. Where most stomas stand tall and firm, ours layed over on its side and kept trying to dig its way back into the body.
I remember going to discussion chatrooms and reading people who were totally frustrated. No one seemed to offer them any hope except “hang in there.” Maybe I didn’t look far enough but I found no answers. We eventually put it together. We learned by failure and were motivated by pain.
I will try to share what we learned.
To be continued...
homo unius libri
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Comments are welcome. Feel free to agree or disagree but keep it clean, courteous and short. I heard some shorthand on a podcast: TLDR, Too long, didn't read.